Raising a child with a neuromuscular disorder: a guide for parents, grandparents, friends, and professionals

Foreword; Preface; Introduction; One: Coping With the Diagnosis; Two: When to Ask for a Second Opinion; Three: Neuromuscular Disorders: History, Incidence, and Genetics; Four: Neuromuscular Disorders: Descriptions and Treatment; Five: Your Medical Team; Six: Navigating the Medical Maze; Seven: General Medical Care; Eight: Special Needs; Nine: Tips for Mothers, Fathers, Grandparents, Brothers, and Sisters; Ten: Tips on Coping With Your Child's Ups and Downs; Eleven: Helping Develop Your Child's Coping Skills; Twelve: Finding the Best School Program.